HRT and Cycles

Wow, I can't believe the summer is almost over and it's been April since I last wrote a blog post. Way too long!

Back in March I got my first cycle, after having nothing since being diagnosed, this was a huge hope for us. I had some normal cycles (28 to 30 days) and then in May/June ended up having a menstrual cycle for 21 out of 30 days, yikes! After talking to my doctor he decided to take me off my bioidentical HRT to see what happened with my cycles after not taking the medication. They thought that I was possibly in remission from POF. Music to my ears.

I started HRT back in October, nothing happened until March...5 months. Based on that information they didn't think it was the HRT causing the cycles. The one thing about POF is that you can go in to remission. The doctor was hopeful that is what happened, my ovaries decided to wake back up and work. The only thing they warned me of is that we don't know for how long or if anything will work while it is happening. With this disease there are a lot of questions and a lot of unknowns. At the beginning I struggled with this a lot. I like to know what is going to happen, I am a planner and an organizer. There was a little sliver of hope that something might happen. There have been cases that women who are in remission have a mature egg that drops and pregnancy happens.

After quitting the pills in June, nothing came in July...nothing came in August. Failed pregnancy test and I was back to the doctor. We chatted about what it all meant, again so many unknowns. All I want is an answer. I had my blood work redone to test my hormones. They all came back the worst they have ever been...Blah!

	April 2015	August 2015
Estradiol	35.2 pg/mL	17.5 pg/mL
Progesterone	3.2 ng/mL	.9 ng/mL
FSH	58.4 mIu/mL	127.1 mIu/mL
LH	22.2 mlu/mL	47.5 mIu/mL

Estradiol goal is 50, Progesterone goal is 10, FSH is supposed to be under 10 and LH is supposed to be less than 7 in order to reach pregnancy. Definitely not where I wanted to be. But, it is out of my control. I understand that but it still doesn't make it any easier to swallow.

So, I went back on HRT starting in August.

Hormone Replacement Therapy - HRT

Since being diagnosed with Osteopenia, my doctors have stressed the importance of Hormone Replacement Therapy (HRT). Since my body is in premature menopause my estrogen is low which normally happens much later in life. With me being so young it is important that my bones are protected since they will be without it for much longer.

I am the type of person that likes to think things out. These are big decisions in my life, taking something for the rest of my life. I was on birth control for 12 years, I don't know for a fact if that had anything to do with my POF, but my body was being tricked each month by hormones that I wasn't actually producing myself. So, I have been thinking about what to do since the end of July.

Since this journey started I have taken a more natural approach, because that is what I believe in. I do not want to force something if it isn't going to happen on it's own naturally. But with saying that I do want to be able to live a long and healthy life the best I can.

My thyroid doctor offers bio-identical hormone replacement. The thyroid medication that I am taking, prescribed by him, is natural instead of synthetic as well.

Natural or bio-identical hormones are the exact same molecular form of the hormones that humans naturally make. They are made from a natural hormone in sweet potatoes or soy beans that is easily converted to natural human hormones.

Based on this information I knew this was the therapy for me.

I made an appointment and went in on Wednesday, 10/1. We discussed the different options, since I had already researched it some we were able to talk awhile about it. One thing that I love about Dr. O is that he takes the time to explain things to me. There is nothing more I don't like than a doctor not willing to talk to me and treat me like a number. He is the exact opposite of that.

I had my blood drawn to check my Estradiol and Progesterone. He also wanted to check my vitamin D, I have been taking this in supplement form as well as calcium and magnesium for my optimal bone health.

• Vitamin D, 25-Hydroxy came back as 86.3 ng/mL, this was in range
• Estradiol came back as 49.5 pg/mL, this should be in between 60 and 100
• Progesterone came back as .4 ng/mL, this should be in between 10 and 20

Not really alarming news to me, when I have had my estrogen and progesterone tested before they always came back low. So, I wasn't expecting any different.

After speaking with the doctor he went ahead and put two prescriptions for me, one for estradiol - .5 mg and one for progesterone - 100mg. We are starting out low and slow to see how my body reacts to it and then will increase the dosages if needed. 

That brings me to today. 

I went by the pharmacy to pick up my prescriptions so I could start taking them. Since it is Friday I decided to just go through the drive thru so I could get home since we had plans for the night.

The lady grabs the two prescriptions, then gets on the speaker. She apologized first, I am guessing because she can see that I am younger, then she said I have to ask you a question in order to be able to give these to you. From the moment she said that, I already knew...

Are you pregnant? 

I swallowed hard and simply said no. This is such a heartbreaking thing for me to answer. Then I got to thinking, crap...I am going to have to answer this every time I am guessing. 

She apologized again, she was a very sweet lady. Stating that by law she has to ask the question. I get it, I understand...but that doesn't make it easier.

As she was sending them out, I asked her if there was a way they could put something on my file. She said no, there was a place to put if you ARE pregnant but there is no where for her to put if you aren't/can't become pregnant. Wonderful news! Oh the joys of infertility.

So, that is one set of prescriptions I will be sure my husband picks up!

Infertility Study Complete and Thyroid Labs

I finished my infertility study that I was a part of. I was worried that I wouldn't have enough to talk about for the hour and a half sessions, but I was wrong. It really is crazy, a lot of times I feel like I haven't done that much or could be doing more with my diagnosis. But, when I look back in my book and on my blog I have really accomplished a lot. Granted I haven't achieved the end result I am looking for.

The first session was a "get to know me" part. What is my diagnosis? What does it mean? What have I done in terms of treatment, etc? That was the easy part. 

The second session was more about the emotional part of infertility. I speak to my husband and family members and friends about my infertility. I have always been very open about it, it is not something I am ashamed of because I now know that it is not my fault. I struggled with that statement a lot in the beginning. Was there something I could of done? What if I wouldn't have taken birth control for so long? But, that wasn't going to get me anywhere. I am a fixer by nature, when you have a problem, you fix it.  It is what it is and there is truly nothing I can do to change it. There were definitely some deep questions. And it took me back to a place that I haven't visited in awhile. I got choked up a couple of times. Not being able to have a child and grief go hand in hand for me. I have mostly happy days now, but somehow the grief part of it has a sneaky way of coming up on me. 

The third session was just a recap of  what we talked about the first two sessions. One of the questions that she asked me was "How does infertility define you?" That is not something that I have ever thought about so it was a hard question for me to answer. I wish I could say that I haven't let it define me or that it doesn't define me but that isn't true. It has changed the person that I am today. I have a lot thicker shell than I used to. I am a lot more sensitive to things than I used to be. It is constantly on my mind. I just know in my mind that all of this is for something else. Just have to be patient and see what that is. I know in my heart that one day we will be parents.

All in all I am really glad I did the study. It taught me a lot about myself and helped me get some emotions out that I wouldn't normally talk about.

I had my normal acupuncture appointment a couple of weeks ago. She suggested that I take the Barnes Thyroid Test again to see if any of my temperatures had changed. My average came back at 97.4 and it is supposed to be over 97.8 so I am still a little low.

I also went today and had my blood drawn for my follow up labs at my thyroid doctor. Hopefully, the medication that I have been on will have helped some. If not, we will just keep increasing the dosage until I get to the right amount.

I saw this quote the other day and I love it. I kind of have a thing for quotes :) Sometimes they are what gets me through the day!

Test Results

What a mess.  That pretty much sums up the ordeal that the last week has been.  I had my blood taken on 9/10 at the hospital.  While I was there I asked them how long they thought it would take they said one to two days.

I wanted the results back the second I got my blood tested!  I called the doctors office on Wednesday and they said they hadn't received the results from the hospital yet.  I called back again on Thursday, same thing. We went out of town over the weekend so I didn't think about it much for the next few days.

Once I got back on Monday I called the doctor again.  She decided this time she would call the hospital (before she was just looking on a program online).  Monday evening I received a call from the lab. They had lost my blood.  Go figure, in today's day and age I don't know how that even happens.  I had to verify my bracelet to my blood multiple times before I could leave.

So, I went back to the hospital, had my blood take again and my results came back the very next day.

Hormone	February 2013	September 2013
HCG	1.7	4
FSH	114	123
LH	42	53
AMH	Not tested	<.16

No positive changes, I am devastated.  After all this hard work and nothing.  The world we live in is very fast paced so we as Americans have become the same way.  I have been learning to have patience.  It is very hard for me.  Waiting for my dream house for 6 months taught me patience.  I think everything happens for a reason and I think that experience was just teaching me for my whole infertility journey.

Taking a look at the larger picture - I was on a pill that tricked my body for years so why would my body in just 3 months snap back from that.

I just keep taking it day by day and hoping for positive results.  At the end of the day that is what we have, HOPE.